Ruth Biller ARVC-Selbsthilfe e.V. European patient advocacy group ERN GUARD-Heart Ruth Biller´s daughter died of sudden cardiac death in 2011 at the age of 14 without any previous symptoms. It took a year before she was diagnosed with ARVC (arrhythmogenic right ventricular cardiomyopathy), a rare genetic heart disease. Ruth Biller is chair and co-founder of ARVC-Selbsthilfe, a non-profit organisation for patients and families with ARVC/ACM. At European level as chair of the European Patient Advocacy Group in the European Reference Network ERN GUARD-Heart, and on international level as the new chair of the Cardiomyopathy Patient Council of Global Heart Hub, she is committed to helping those affected by rare heart diseases, and tackle their unmet needs by information, advocacy and networking to ensure optimal medical and psychosocial care, intensified research and better treatments. One of her major priorities is to prevent sudden cardiac death in other families.